Effective Date: 05 Nov 2025

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Living with HS is committed to protecting your personal data and respecting your privacy. This Privacy Policy outlines how we collect, use, and safeguard your information in compliance with the UK General Data Protection Regulation (UK GDPR) and the Data Protection Act 2018.

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1. What Information We Collect

We may collect the following information:

• Name and contact details (e.g., email address) — when you sign up for updates, events, or surveys.

• Health-related information — if you choose to provide it in a survey or registration form (only collected with your explicit consent).

• Usage data — including cookies, IP address, and browsing behaviour (via analytics tools).

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2. How We Use Your Information

We use your personal information to:

• Provide updates, event invitations, and relevant resources;

• Improve our website and services;

• Understand audience interests and needs;

• Comply with legal obligations.

We do not use your data for profiling or automated decision-making.

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3. Legal Basis for Processing

We rely on the following lawful bases:

• Consent — when you sign up to receive emails or submit sensitive data (you can withdraw consent at any time);

• Legitimate interests — for site analytics and improvement;

• Legal obligation — if required by law.

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4. Sharing Your Data

We do not sell or rent your personal data. However, we may share it with:

• Email marketing providers (e.g., Mailchimp);

• Event management platforms (e.g., Eventbrite);

• Analytics services (e.g., Google Analytics);

All third parties are GDPR-compliant and only process your data under our instructions.

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5. Data Retention

We retain your data only for as long as necessary to fulfil the purposes it was collected for, including legal, accounting, or reporting requirements.

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6. Your Rights

Under UK data protection law, you have rights including:

• Access to your personal data;

• Correction of inaccurate data;

• Deletion of your data;

• Restriction or objection to processing;

• Data portability;

• Withdrawal of consent.

To exercise any of these rights, email us at: enquiries@livingwithhs.com

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7. Cookies

Our website uses cookies to improve performance and collect anonymous usage data. You can manage cookie settings in your browser.

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8. Data Security

We take appropriate technical and organisational measures to protect your data from unauthorised access or disclosure.

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9. Changes to This Policy

We may update this Privacy Policy from time to time. Revisions will be posted on this page with an updated date.

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10. Contact Information

If you have any questions or concerns, or wish to exercise your rights:

• Email: [Insert your contact email]

• Address: [Insert organisation or business address, if applicable]

• Supervisory authority: You also have the right to complain to the Information Commissioner's Office (ICO) at www.ico.org.uk.